Tag: pain

I don’t know what to do with myself

This is probably going to sound weird but just lately my body has been really getting on my nerves.

November has been a hectic month in terms of going NANOWRIMO again, trying to plan for Christmas, and trying to get lots of videos ready for my YouTube channel. Oh, and it seems to have been a really, really bad cerebral palsy month.

So far I’ve gone from having neck pain, to back pain, reverted back to having more neck pain, followed by more back pain, then a strange and unpleasant new pain in my hips, and now my legs are grumpy and my shoulder blades aren’t exactly my best friend right now either.

As soon as I get one top of one ache, another one takes its place. It’s like I’m playing a game of whack-a-mole that you get inn amusement arcades, only the machine has gone into overdrive and I’m not sure how to stop it.

I’m tired. I haven’t been sleeping well, even though I’ve been taking my Baclofen to try and keep the aches at bay long enough to get a good night’s sleep.

I’m emotionally drained too. Sometimes I think bad CP days take up more mental energy than physical. It’s like you’re constantly trying to keep moving so that you stay one step ahead of your own body.

It’s hard.

I feel like all my posts here lately have been really negative and I hate that.

Sorry guys. I’m just drained.

I don’t know what to do with myself.

 

Things I do on bad CP nights

I’ve been having quite a few bad CP nights lately so I thought I’d share some of the things I do when I’m having one:

  • Keep moving around – I hope I can get comfy if I try lying in enough different positions
  • Lots of physio
  • Get up and do something productive – When I have a bad cerebral palsy night I know there’s a pretty good chance I’ll sleep in the next day to compensate so I like to try and do something productive because I find that makes me feel a lot less stressed the next day. Plus, it gives me something else to focus on besides the pain, which can sometimes help make me feel better.
  • Read – so many books, so little time
  • Binge watch Netflix

What do you do on bad CP nights?

Arm Pain

Thankfully, I don’t get much in the way of arm pain anymore. My shoulders used to hurt quite badly when I was younger because of the way I stood, my my surgery a few years ago seemed to solve that problem nicely.

That said, over the weekend, I got quite a bad bout of shoulder pain that I think started in my back and went down into my right arm. This may not sound like much, but I was surprised at just how much bother it caused me.

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A string of bad days

Last week was tough.

In fact, it was one of hardest I’ve had for a while both on a physical and mental level.

The first few days were spent riddled with anxiety about job hunting related things that I won’t bore you with. As soon as that had sorted itself out, I had a physio appointment during in which the subject of how my increasing pain levels might be linked to the fact I’m getting older. Even if my physio did tell me she thinks I’m a long way from coming off my feet yet, I’m only 24 and right now I’m not exactly filled the confidence about my ‘cerebral palsy future.’

Then came the bad CP days; three of four of them in a row.

Continue reading “A string of bad days” →

I can’t get no sleep

It’s almost 2AM and, like the Faithless song says, I can’t get no sleep. It has nothing to do with insomnia in my case though, but has just about everything to do with an achy back and neck that has been bothering for most of the day.

It’s not all bad though. At least the headache that came along with it on and off since I woke up seems to have gone away and I’ve been able to sort out a couple of blog posts and edit a video before I crawled into bed. I know, I know, being on the laptop writing this is hardly going to help matters, but it’s helping me feel less frustrated about the fact I can’t seem to nod off.

Continue reading “I can’t get no sleep” →