Okay, okay. I admit it: I knew it had been a while since I updated you guys on how things were going, but it turns out that it’s been almost a month! I’ve had a fair bit going on so I thought I’d do one of my mini round-up posts to bring you up to speed.
I saw my consultant for my latest round of botox injections. I have these in my legs to try and ease the muscle tightness caused by my cerebral palsy. The appointment also gave me chance to talk to my consultant about my increasing hip pain. She agreed that we need to do something to try and level off my pelvis, so she sent me back to orthotics to get a raise put on one of my shoes. If that hasn’t made much difference by the next time I see her (in about four months, this time) she’s going to look at referring me back to orthopedics to see if they have any suggestions. I haven’t seen anyone from that department once I’d finished having all my hip surgery just before I went to university, so that would be interesting but scary at the same time.
After seeing my consultant I was sent an appointment to go back to orthotics which I always dread (orthoics I go waaay back). I saw an orthotist I’ve never met before. She seemed nice and measured me up for a new pair of calipers (similar to the ones pictured) to go along with the shoes when I told her I don’t have a spare set. The new shoes will have a raise on one side, and she’s given me a wedge to put inside my current shoe until the new ones arrive.
I noticed straight away that it made my hip feel much more comfortable when I’m standing or walking but it hasn’t helped when I’ve been sitting and laying down. Maybe it will in time, but I’m not sure.
My back pain has also been much worse in the last few days. I’ll just need to see if this is a standard phase in my ‘pain cycle‘ or if it will last longer than that as we try and change my posture.
People who’ve been reading this blog for a while now might know that I got a new pair of night splints a few months ago; and I’ve blogged about my love for them ever since. I wake up in the morning feeling like I’ve had a really good stretch without having to put in too much effort (besides remembering to get someone to put them on for me). I don’t have to find time to build wearing them into my day either. Needless to say; I think I’m in love. As long as I remember to put a pair of socks on so that the straps don’t rub my feet I couldn’t really find anything not to like.
Just lately we’ve been having some really warm weather here to the point where I can walk around the house in bare feet; and I say this as someone who owns a pair of microwave socks because her feet are usually so cold. I love warm weather so I’ve been switching between bounding around like an excited puppy, eating loads of Ben and Jerry’s, and reading in the garden or our lovely and warm conservatory. Happy days! I love it. Until it’s time to go to sleep.
My night splints are also fully-lined on the inside, (that’s part of the reason I find them so comfy), but it also makes my feet really hot. Usually, I find having warm toes quite a novelty, but with the added heat it’s making them just that bit too toasty.
I’ve started sleeping with my feet poking out of the bed covers to try keep them cool, but the other day I had to admit defeat and take them off. I’m even thinking of wearing them during the day (I can also wear them when I’m resting if I want to) until it cools down a bit.
Still, I’m not going to complain that the sun is here. I’m going to enjoy it while I can!
Well, my holiday is now over and it’s back to normal for me. Yesterday I went back to the orthotics department because my AFO splint that I’m supposed to wear during in the day still isn’t comfortable on my left foot. The one for my right foot is really comfortable and I could easily wear that one all day. Sometimes it takes a while to get these things right.
My orthotist tried blowing the splint out one last time to see if that would make it less tight. It helped a bit but not enough. He decided that he would recast that splint at an angle that should be more comfortable for my foot to tolerate. I should have it in a couple of weeks or so. In the meantime I just have to try and wear my current left one as much as I can without making myself too sore. I’m still keeping the really comfy right-foot one.
This morning I’ve also made an appointment to have my wheelchair booked in for a service. It’s been a while since in had one done and I think there’s a few things that need looking at. I’m not a professional so I don’t know for sure, but I’d rather get them checked out. That should be happening within the next few days so I’ll let you know what happens there too.
There has been an achievement in Nicland this week, or it feels like one to me at least.
I’ve managed to spend my first full night in my night splints since I got given them a while ago!
At first I couldn’t wear them for a whole night because I can’t put them on for myself so I would have to take them off again if I needed to get up in the middle of the night for anything. Then I took them back to the hospital and got some walking grips put on the bottom so I wouldn’t need to keep taking them off.
Even after I’d had the grips put on, it still took me some time to be able to wear them for a whole night because I had to build up wearing them for longer periods of time slowly by a couple of hours at a time until I got used to it.
Now, I’ve finally done it! I was pretty surprised when I woke up the next day and found that they were still on.
Hopefully I’ll be able to do this most of the nights that I wear them now.
People who’ve been following this blog a while might know that I got given some new night splints a bit ago. These are to wear when I’m in bed or just resting in the house. I like them. I personally find them really comfortable and can feel the stretch when I’ve had them on.
However, I could never manage to wear them for an entire night because I haven’t yet managed to be able to get them on for myself, and they didn’t have walking grips on the bottom. This meant that I had to take them off if I needed to get up in the middle of the night, and kept them off because I didn’t want to wake my mother up to get her to put back on again.
However, at my last appointment with my orthotist, he offered to put some grips on the bottom for me if I brought them back in to make this easier.
I’m really excited about this because I’m hoping that I’ll be able to move around in them easily so I’ll be able to wear them for longer.
It will be a little while before I get them back, but I’m already looking forward to it.
I’ll let you all know how it goes as soon as I can.
I had a lovely surprise when I went to see the physio this week and she said that she was pretty pleased with the way that my ankles and legs were feeling in terms of muscle tightness. I was worried that they might have stiffened up a bit since the last time I saw her but she seemed pretty happy with them when she did my stretches so I was impressed. I decided to take that as a good sign. I guess my day splints and my night splints must be doing some good.
The day splint I wear on my left foot is still feeling a little tighter than I want it to and is rubbing a bit, although it hasn’t blistered me or anything so that’s good. It just makes my foot a little red in places so I’m going to go back and see my orthotist so he can tweak it a little more for me. I’ve been back about this a couple of times now, and I can tell that we’re almost there with it but I know that it’s important that we keep going until it feels as comfy as the one I wear on my right foot does.
It’s no one’s fault that I have to keep going back, it just happens sometimes.
I’m willing to continue having adjustments made a little bit at a time until we get there.