Hello, hello – how are you all? I’m pretty sure I’m not the only one who feels as though 2020 has lasted about three years already and we’re only just halfway through. Those of you who follow me on Twitter might be aware that my dad died of cancer a few weeks ago. I won’t go into too many details here as he wouldn’t want me to. I’ll only say that he got diagnosed in 2019 and passed away peacefully in April 2020.
I’ve been working full time from home for a last few months because of coronavirus. While I don’t miss my commute, I miss seeing my colleagues face-to-face rather than on video chat that may or may freeze every 30 seconds. I’m working on a shift pattern, which is new for me. Sometimes I’ve even done a mixture of early shifts and late ones in the same week, which has been interesting when it’s come to managing spoons. I might share some of the strategies I’ve been using to try manage my pain levels, energy levels and trying not to burn out mentally.
I had actually been planning on moving out this year to somewhere closer to work purely so that I could cut my commute down…needless to say those plans are now on hold for the foreseeable future. My life has changed a lot in the last 12 months; I got a new job at work, my 10 year relationship ended, all the things that happened with my dad…
I think I just want some time ‘be’ with the life I have now for a little. If such a thing exists, but I’m not convinced it does.
It’s not all bad news though. Slowly but surely I’m starting to write again, I’ve gone back to therapy (via Zoom) to keep and eye on my mental health and my hip and pelvis pain has been loads better while I haven’t been leaving the house.
In fact, I’ve hardly had any bad cerebral palsy days at all, which is wonderful
Okay, okay. I admit it: I knew it had been a while since I updated you guys on how things were going, but it turns out that it’s been almost a month! I’ve had a fair bit going on so I thought I’d do one of my mini round-up posts to bring you up to speed.
I saw my consultant for my latest round of botox injections. I have these in my legs to try and ease the muscle tightness caused by my cerebral palsy. The appointment also gave me chance to talk to my consultant about my increasing hip pain. She agreed that we need to do something to try and level off my pelvis, so she sent me back to orthotics to get a raise put on one of my shoes. If that hasn’t made much difference by the next time I see her (in about four months, this time) she’s going to look at referring me back to orthopedics to see if they have any suggestions. I haven’t seen anyone from that department once I’d finished having all my hip surgery just before I went to university, so that would be interesting but scary at the same time.
After seeing my consultant I was sent an appointment to go back to orthotics which I always dread (orthoics I go waaay back). I saw an orthotist I’ve never met before. She seemed nice and measured me up for a new pair of calipers (similar to the ones pictured) to go along with the shoes when I told her I don’t have a spare set. The new shoes will have a raise on one side, and she’s given me a wedge to put inside my current shoe until the new ones arrive.
I noticed straight away that it made my hip feel much more comfortable when I’m standing or walking but it hasn’t helped when I’ve been sitting and laying down. Maybe it will in time, but I’m not sure.
My back pain has also been much worse in the last few days. I’ll just need to see if this is a standard phase in my ‘pain cycle‘ or if it will last longer than that as we try and change my posture.
I’m going to guess that you all know what I’m talking about by now when I talk about my mystery hip pain – the one that bothered me on and off for a couple of years for reasons no one could work out, but, somehow, some acupuncture sessions got rid of? Yeah, I know, I’m sick of hearing myself talk about it too.
Well, I have news.
I fell over the other day and now it seems to be back.
It’s been almost two weeks since I had my last acupuncture appointment. It’s been so, so helpful in reducing pain in my hip. I have another appointment booked later this week and I can’t wait.
Up until this point, I’ve been going once a week or so and I haven’t had much bother in between. However, this weekend, it’s started keeping me awake at night again, but at least I know the effects lasted longer than a week I guess.
It hasn’t really been giving me too many problems at during the day, until today. I’m going to try getting a hot shower and putting a wheat bag on it, I think. That doesn’t usually do much to help it though, if I’m being honest.
The bottom of my back is also feeling a bit stiff but laying on my front to stretch it out with a wheat bag on it usually does help that. I’m jut trying to put off doing it for the moment because I’m so tired there’s a good chance I’ll fall asleep if I do!