Tag: disability

Changing bedsheets

There’s been a few times now that I struggle with various aspects of housework, like doing the laundry and folding clothes to put them away or pack

I’ve found ways to make doing all these easier over time, like using liquid tabs instead of washing powder so that I don’t have to struggle with lifting heavy boxes of washing powder, and I think if I ever lived alone I’d probably invest in a washer/dryer so that I wouldn’t have to faff around trying to hang things on a clothes horse or getting the clothes from one thing to the other.

That said, the one thing I don’t think I’ll ever be able to fathom, and, yes, I know you’re never supposed to say never, is changing my bed sheets. I know enough able-bodied people who are a lot taller than my tiny 4ft 10″ who find that really hard and say they prefer to do it with another person.

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Starting Baclofen for cerebral palsy

You may have seen on social media that I finally took the plunge and started taking Baclofen a couple of weeks ago. It’s basically a muscle relaxant my consultant prescribed me quite a few months ago to help with the increasing number of bad cerebral palsy days I was having.

She told me it was something I could basically start and stop taking as I need to because it would be out of my system within a few hours. She suggested a I started on a smaller dose twice a day, but I could increase that to three times a day if needed. She also suggested an amount I could up the dose to if necessary.

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An emotional low

Over this past week or so I’ve hit a real emotion low and I don’t mind telling you that it’s been hard. Very hard.

There’s been a couple of things at play that have contributed to this. Some of it is thanks to the fact that I’m feeling quite hormonal (not that you wanted to know), but as I’ve also told you before, my cerebral palsy and my period do not get on. It makes my legs ache right down to the bones and during that time I also feeling a lot stiffer. That doesn’t exactly boost my mood either.

Other factors are that it feels like everyone around me is moving forward in their lives while I’m stuck. Job hunting is not going well, and the things I’m finding to apply for are either in areas that I can’t afford to live in, or are in areas that would possibly be too hard for me to live independently in geographically, because they’re very hilly or not easy to get around. I would probably still go for the jobs in these areas though and look into getting a powered wheelchair, although this isn’t really something I want to do. More on that in a separate post.

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