I have an appointment tomorrow that I’m nervous about.
I have an appointment tomorrow that I’m nervous about.
I’m writing this post in my local Costa, sipping on tea and thinking about the week I’ve had.
It’s been a mixed bag. Nothing bad has happened and good things are happening on th CP front, but I’m feeling stalled in other areas of life.
I had an appointment with my consultant this week. This happens about once and year and we discuss the things that might help me progress.
I had my appointment to get some more Botox injections in my legs yesterday. It’s hoped that doing this will help to ease some of my muscle tightness. I had this done as few times as a child and I’ve had them again as an adult too. I go to most of my appointments alone these days but this is one that I usually like my mum or my dad to come to with me. If I’m being honest I think it’s mostly so I can squeeze their hand while I’m having it done. However neither of them were free to come with me, so I had to make do with digging my nails into my palms instead.
Personally, I’ve found that they’ve worked well for me in the past, and I have to make sure that I really work at my physio after I’ve had the injections to get the best possible results. It really is a good motivator to try my best to keep on top of things.
Yesterday, I also had the idea to put a pair of shorts on underneath a baggy pair of jogging bottoms I bought to help me keep warm when I had my serial casting pots on, so it would be easier and faster than having to change into some sorts when I got to the appointment. This is something that I think I’ll definitely try to remember to do next time because it really did make a big difference.
I’ll go back and see my physio in a couple of weeks time so she can see how well she thinks the Botox is working. In the meantime, I’ll just have to try my best and do as much work as I can.
So it turns out that the appointment that I had on Friday wasn’t so scary after all. In fact, I’d say it went rather well.
Quite a few things happened actually. We discussed maybe trying a new kind of splint as opposed to my callipers because they blister me so much, although I have to go for more appointments with a physio and someone who deals with splints to weigh up pros and cons first so I won’t go into details about that yet.
A few suggestions were made about things that might make my life in the kitchen a little bit easier. The occupation therapist who was there took my concerns on board and is going to do some research for me and try and get hold of some equipment for me to borrow to see how well it would work for me before I buy any. Again, I’ll let you know more when I do.
And, oh yeah, they gave me some more Botox in my left leg, which was an unexpected, (nice) surprise.
I’ve had this treatment done a few times as a kid, and once again last year as an adult and every time it has worked well for me. I mentioned to the doctor who was there (the same one who gave me the injections last year) that I thought it might be worth doing some more. She agreed that it would be.
“We can do it today, if you like” she said after giving it some thought.
“Er, yeah okay.” I said, a little shocked that that was an option.
And so we did.
I wasn’t expecting it but I wasn’t about to turn it down either.
“Bet you’re glad I came with you now,” Mum giggled as she helped me roll up my jean leg and gave me her hand to squeeze. Yes, I still like to do that. When I use to have them as a child, the would numb my legs first with what they called “magic cream”. Now that I’m all grown up I don’t get that anymore, but I don’t think Mum minded me grasping onto her too much.
I personally don’t find that these injections hurt as such, it’s more like you’re being stung in my opinion, but it’s just nice to have someone there, you know?
Now that the deed has been done, it means that the intensive stretching has to start so that we can make the most out of it. So far, I think we’re doing pretty well at keeping on top of it, but it will be a couple of weeks before we’ll be able to tell what a difference it will make.
Let’s go, go, go!