Botox, orthotics & Hip Pain: a mini round-up

Okay, okay. I admit it: I knew it had been a while since I updated you guys on how things were going, but it turns out that it’s been almost a month!  I’ve had a fair bit going on so I thought I’d do one of my mini round-up posts to bring you up to speed.

Botox injections

I saw my consultant for my latest round of botox injections. I have these in my legs to try and ease the muscle tightness caused by my cerebral palsy.  The appointment also gave me chance to talk to my consultant about my increasing hip pain. She agreed that we need to do something to try and level off my pelvis, so she sent me back to orthotics to get a raise put on one of my shoes. If that hasn’t made much difference by the next time I see her (in about four months, this time) she’s going to look at referring me back to orthopedics to see if they have any suggestions. I haven’t seen anyone from that department once I’d finished having all my hip surgery just before I went to university, so that would be interesting but scary at the same time.

Orthotics

After seeing my consultant I was sent an appointment to go back to orthotics which I always dread (orthoics I go waaay back). I saw an orthotist I’ve never met before. She seemed nice and measured me up for a new pair of calipers (similar to the ones pictured) to go along with the shoes when I told her I don’t have a spare set. The new shoes will have a raise on one side, and she’s given me a wedge to put inside my current shoe until the new ones arrive.

Callipers
My callipers

I noticed straight away that it made my hip feel much more comfortable when I’m standing or walking but it hasn’t helped when I’ve been sitting and laying down. Maybe it will in time, but I’m not sure.

My back pain has also been much worse in the last few days. I’ll just need to see if this is a standard phase in my ‘pain cycle‘ or if it will last longer than that as we try and change my posture.

Cerebral Palsy and Life Update May 2016

I know I posted a cerebral palsy update on my YouTube channel about a week ago, but a lot of CP-related stuff has happened since then, so I thought I’d do an update here, with some other stuff from my general life thrown in too.

Let’s start with the CP stuff:

So, I had my Botox appointment earlier this week, I think I had two injections in each leg this time. There’s not much else to say about that really. It was fine. It always is. I just have to make an extra effort to do my physio now.

Some of you might know that my mystery hip pain has been niggling at me over the last couple of weeks because I tripped over, yet again. Well, my family helped me do some of the stretches that I can do for myself and it seems to have gone again. I didn’t need to ask for more acupuncture, which is a good sign, I guess…

Anyway, moving on to general life stuff. Things are getting busy in this department:

  • I’ve got some more freelance social media work, yay!
  • Writing is still happening. Slowly. But it is happening!
  • I have two trips coming up, one with my family, one with Rob. My family and I are going to London to see some of our other family members. Rob and I are going to Scarborough for our anniversary. We won’t be going to the beach though. He hates water and I hate sand so avoiding the beach will probably be our top priority.

Well, that’s everything that’s going on with me, what about you?

Which one is it again?

The thing about having botox injections to help  with my cerebral palsy related muscle tightness is that my appointments can be made up to six months in advance. Needless to say that I usually have a rough idea of when they’re going to be, but the exact date doesn’t tend to stick in my brain until I decide to double-check when I know I’m getting close.

The other day I found myself thinking that I must be about due to go for another round of injections. My hospital usually text me or ring me a couple of days in advance to double check that I can still make it, so I didn’t think I’d missed it, but made a note that I should probably either try and find the letter, (which I usually stick to the fridge, but hadn’t this time), or make a few phone calls.

Continue reading “Which one is it again?”

More Botox and new walking frame update

I’m putting Fun Fact Friday on hold for another week so that I can update you all on yesterday’s hospital appointment. Honestly, I don’t think it could have come at a better time for me, with all the pain I’ve been having the last few weeks.

I met with my physio and my consultant, told them about the issues, and that my recurring, cause-unknown hip pain had returned again and is back to keeping me awake at night. I roll over constantly trying to get comfy but it takes hours. I feel really sorry for Rob because it makes it hard for him to get any sleep too.

They decided to prescribe  me some stronger painkillers for when I need them, and they’re going to arrange for me to have some acupuncture. I’ve never tried that before but I know people who’ve had it and say they’ve had great results. I’d love to know if you guys have had any and how you found it.

I had some Botox injections in both legs too; in both my hamstrings and in another muscle that I don’t have a clue how to spell. Sorry. My physio tried a new technique when she was injecting the muscle I can’t spell so she’s interested to see if that makes a difference.

Oh, and apparently I should finally have my new walking frame soon. Apparently it’s at the hospital, they’re just waiting for the right department to build it up now.

A confidence boosting appointment

I’m writing this post in my local Costa, sipping on tea and thinking about the week I’ve had.

It’s been a mixed bag. Nothing bad has happened and good things are happening on th CP front, but I’m feeling stalled in other areas of life.

I had an appointment with my consultant this week. This happens about once and year and we discuss the things that might help me progress.

Continue reading “A confidence boosting appointment”