My first acupuncture appointment

Hey guys,

I’ve just got home for my first-ever acupuncture appointment, and by now you probably know that I was a bit apprehensive about the whole thing:

Now though, I have no idea why I was so nervous. The lady doing the treatment was lovely, and we had a long chat before she even got any needles out about the hip pain that I would be having it for; like what things made it worse and what things seemed to sooth it. We talked about my hobbies and I told her about this blog and the fact that I make videos on YouTube. It all made me feel at ease.

I had no idea how many needles she would use (although needles themselves don’t actually bother me tbh) but in the end I think she only used two. Neither of them hurt.  It did feel a bit odd, especially when she was turning them, but it wasn’t a bad sensation. She left them in for ten minutes, and then, because I was tolerating them well, she decided to leave them in for another ten and then we were done.

I’m going back next week, but I’m not going to be nervous this time.

More Botox and new walking frame update

I’m putting Fun Fact Friday on hold for another week so that I can update you all on yesterday’s hospital appointment. Honestly, I don’t think it could have come at a better time for me, with all the pain I’ve been having the last few weeks.

I met with my physio and my consultant, told them about the issues, and that my recurring, cause-unknown hip pain had returned again and is back to keeping me awake at night. I roll over constantly trying to get comfy but it takes hours. I feel really sorry for Rob because it makes it hard for him to get any sleep too.

They decided to prescribe  me some stronger painkillers for when I need them, and they’re going to arrange for me to have some acupuncture. I’ve never tried that before but I know people who’ve had it and say they’ve had great results. I’d love to know if you guys have had any and how you found it.

I had some Botox injections in both legs too; in both my hamstrings and in another muscle that I don’t have a clue how to spell. Sorry. My physio tried a new technique when she was injecting the muscle I can’t spell so she’s interested to see if that makes a difference.

Oh, and apparently I should finally have my new walking frame soon. Apparently it’s at the hospital, they’re just waiting for the right department to build it up now.

Pain Update

There’s no denying that November was possibly one of the toughest months I’ve ever faced on a cerebral palsy level. Everything hurt and getting on top of the pain was tough. I had to cancel meetings with friends which is something that I hate doing.

However, over the last couple of days things have slowly been starting to get back to my level of normal. Normal is good. I can deal with normal.

I’m not sure what happened to make things start to settle down. Maybe it’s because I stayed at my boyfriend’s flat for a couple of days and the chairs and the bed at his place are obviously different from the ones I have at home so it meant I was sitting and laying in completely different positions.

I’m starting to get some sleep again. Sleep is good too.

Last night, I slept in a bit of a strange position and woke up with a stiff neck, but I keep doing physio on it and heating up wheat bags so I’m hoping that will settle down in the next couple of hours.

I’m going to  take this as a good sign.

#sorrynotsorry

I’m taking a break from Fun Fact Friday to bring you what I hope you’ll agree is some good news…

I finally had a good CP day yesterday! It feels like it’s been so long since I’ve been able to say that. Oh god, it’s such a relief.

So, yesterday was relatively pain-free once I managed to use a wheat bag to get rid of the neck ache I woke up with at about eight o’clock in the morning.

Well Nic, I hear you ask, what did you do with your day? Did you take advantage of it?

Why yes, I did. I slept. I slept so hard to catch up on all the sleep I missed out on. And I’m not sorry. Not even one little bit

I rolled over and then when I looked at the clock again it was after 11. Then I got up, did some writing, had a nap, then met a friend in the evening and then came home and went back to bed.

Overall, I’d say I spent more time asleep yesterday than awake, and it felt amazing. I feel so much better. When I have three or four bad CP nights in a row I do start to wonder if I’ll ever get a good night’s sleep again, if I’m honest.

But I did.

What can I say? #sorrynotsorry