Those of you who like View From a Walking Frame’s Facebook page or follow me on Twitter (@NicolaG01) might have noticed that I’ve been having a few bad cerebral palsy days lately.
On these days, I feel physically like rubbish because most things ache of hurt, but they also have quite an impact on how I feel emotionally too.
Continue reading “The emotional side of bad cerebral palsy days”
I’ve come to the conclusion that I’ve been spending far too long at my laptop lately and I love taking five minutes to lay down and stretch out all my muscles which my physios recommend that I do anyway to help with the muscle tightness that I get as a result of my Cerebral Palsy.
Thankfully, Camp NANOWRIMO is almost over. I set myself the goal of writing 60,000 words in the 30 days of April. My current word count is 39,641 so I’m not sure I’ll make it but it’s possible I guess.
I get back pain quite often, usually as a result of the way I’ve been sitting, or standing, or spending too long in one position.
These days, I get it mostly in one of two places, usually in my upper back, (usually rather unhelpfully on the spot where my bra strap sits, just to make it extra annoying), or right at the base of my back. If I had to choose, I’d say that the latter of the two is the more annoying one because when I get it there it always feels like my back would cave in on itself if someone were to put too much pressure on the sore area. I know this won’t happen, but anyway…
Well guys all I can say if that I’m not even really sure where to start with today’s post. I fully intended to update you all a bit more about that hip pain that’s been bothering me for the last six months or so and the x-rays that I had done because of it, but then life got in the way. Well, by life I mean that I found myself contending with hip pain that was making me wish that someone could remove my left leg from my hip joint for a couple of hours just to give me a break, a pretty painful ear infection that felt me feeling pretty yucky, and to top it all off I’ve got a wisdom tooth trying to come through. It’s been cutting its way through my gum on and off since my first year at university (otherwise known as the end of 2009) so part of me wishes it would just hurry up and get a move on.
So, anyway, moaning aside, I spent most of last week feeling pretty drained and a bit grumpy and I put whatever brain power I had into trying to keep on top of my goal to take part in National Novel Writing Month, which challenges people to write 50,000 words of fiction in the 30 days of November. I won’t lie, I did get a little behind schedule (okay, quite a bit behind) in the middle of last week, but somehow, and don’t ask me how, I’ve managed to get myself back on track. Yay me!
The novel idea that I’m working on trying to make a good start on this November is about a 16 year-old living with Cerebral Palsy as she navigates the world of growing up, relationships and dealing with the impact her disability has on my life. While the character herself isn’t me in fictional form or anything, I’ve spent a lot of time thinking about my own disability over the last few days. This has been even more prominent seeing as I think I’ve had more ‘bad CP days’ over the last few months than I’ve had in the last few years and I think a lot of you know that I’m not very happy about that but I’m trying to deal with it and keep going, although I really, really want to get my hip sorted out my because it’s really, really starting to tick me off now to say the least.
I still don’t know if anything will ever come of the writing that I’m working on right now. Maybe it will, maybe it won’t. I think it would be nice if it did, but it’s too early for me to say if I think it will be good enough to show to the rest of the world one day or not. Right now, it’s helping me out in more ways that one so that’s good enough for the moment, as for the future, we’ll just have to wait and see.
in other news my hip x-ray came back fine, which is a good thing and I’m really happy about it obviously, but it still doesn’t answer the question for why it’s been playing up, but I’m seeing my physio later this week so hopefully we can come up with a plan to find out.
Sorry if this post has been a bit of a ramble, but thanks for listening, I really appreciate it
Love,
Nic xx
Hey guys, today is your lucky day because I’ll be posting twice. Fun Fact Friday fans will be pleased to know that this week’s installment will be coming up later this afternoon, but for now I wanted to share my latest vlog with you and the pain that I’ve been having of late.
I hope you’ll forgive me for doing two updates in one day, but, for now, enjoy the video.
viewfromawalkingframe 