Tag: disability

#sorrynotsorry

I’m taking a break from Fun Fact Friday to bring you what I hope you’ll agree is some good news…

I finally had a good CP day yesterday! It feels like it’s been so long since I’ve been able to say that. Oh god, it’s such a relief.

So, yesterday was relatively pain-free once I managed to use a wheat bag to get rid of the neck ache I woke up with at about eight o’clock in the morning.

Well Nic, I hear you ask, what did you do with your day? Did you take advantage of it?

Why yes, I did. I slept. I slept so hard to catch up on all the sleep I missed out on. And I’m not sorry. Not even one little bit

I rolled over and then when I looked at the clock again it was after 11. Then I got up, did some writing, had a nap, then met a friend in the evening and then came home and went back to bed.

Overall, I’d say I spent more time asleep yesterday than awake, and it felt amazing. I feel so much better. When I have three or four bad CP nights in a row I do start to wonder if I’ll ever get a good night’s sleep again, if I’m honest.

But I did.

What can I say? #sorrynotsorry

 

I don’t know what to do with myself

This is probably going to sound weird but just lately my body has been really getting on my nerves.

November has been a hectic month in terms of going NANOWRIMO again, trying to plan for Christmas, and trying to get lots of videos ready for my YouTube channel. Oh, and it seems to have been a really, really bad cerebral palsy month.

So far I’ve gone from having neck pain, to back pain, reverted back to having more neck pain, followed by more back pain, then a strange and unpleasant new pain in my hips, and now my legs are grumpy and my shoulder blades aren’t exactly my best friend right now either.

As soon as I get one top of one ache, another one takes its place. It’s like I’m playing a game of whack-a-mole that you get inn amusement arcades, only the machine has gone into overdrive and I’m not sure how to stop it.

I’m tired. I haven’t been sleeping well, even though I’ve been taking my Baclofen to try and keep the aches at bay long enough to get a good night’s sleep.

I’m emotionally drained too. Sometimes I think bad CP days take up more mental energy than physical. It’s like you’re constantly trying to keep moving so that you stay one step ahead of your own body.

It’s hard.

I feel like all my posts here lately have been really negative and I hate that.

Sorry guys. I’m just drained.

I don’t know what to do with myself.

 

A different kind of pain

I have a lot of different kinds of pain because of my cerebral palsy, but I get some of them more often than others.

The ones I think I have the most often are probably achy hamstrings, hip pain, neckache and backache, but over this past week or so I have been getting a couple of different pains and I’m not really sure how to deal with them.

Just lately I’ve been getting pins and needles-style pains and cramps under the big scars on my hips and I’ve been getting pins and needles and cramps in my legs when I walk.

It kept me awake last night too.

I’ve started taking my Baclofen to try help this.

This is probably going sound really strange, but this morning I woke up without any of these new pains but I had backache and neckache, and I was kind of relieved because these are ones that I have most often and I know how I can deal with them.

However, the hip pain did come back once I’d been awake a little bit and now I’m trying to make sure it doesn’t get too bad.

Do any of you ever get new aches or pains and how do you work out what to do.

More than one at a time

I’ve certainly been feeling a lot tighter in just about all of my muscles lately. My legs and back are the main culprits, but my neck is not especially happy at the moment either.

Part of it I think is the cold, and the other big factor could be that I haven’t been leaving the house as much of late either. This means less walking and more time sitting hunched over a laptop, and trying to remember to break my days up by good long sitting to stretch out my legs and also give my back a different kind of support.

More and more of my days will probably be like this over the next few months as winter gets closer and closer and brings with it the ice and snow and cold and all those other things I love so very much.

(I came to the conclusion a long time ago that snow if one of the most physically disabling things out there for me.)

I’ll probably spend more and more time cuddling a wheat bag, both to help me keep warm and to try and keep my body a bit happy with me, and I think it’s getting to the time of year now where I’m going to need to use more than one at a time.

Thankfully, I’m not the only one who uses them in my house so we have a pretty large collection of them in all different shapes and sizes, so I think I’m going to go and heat two up; one for my back and one for my legs.

My neck would probably appreciate one too if I’m being honest, but then I think I might get a bit too hot.