November is getting crazy!

Yes, I am we’re still only in October (just) but November is already shaping up to be a pretty mental month here in Nicland.

I already have three appointments scheduled, two are CP-related and one isn’t.

I’ll be heading to the dentist for my regular check-up, which should hopefully only be one session, as well as going to the orthotics department to get news shoes fitted for my calipers, and having another round of Botox in my legs to help relax the muscles.

But that’s not all that I have going on.

November is also National Novel Writing Month, a project that challenges people all around the world to write 50,000 words in 30 days. That might not sound like a lot of work to some of you, but when you’re trying to balance that with everything else going on it your life, time can pass by without you even noticing.

If you want to know more about  how I get on, I’ll (hopefully) be doing weekly videos on my YouTube channel again. Either way, it will be nice to get some more positive content going up on this blog in the next few weeks.

Let the fun begin!

My happy Monday

I’m starting this week on a high. If you’ve been reading this blog over the last few weeks then you’ll probably know that I’ve been having a lot of extra aches and pains die to my Cerebral Palsy that has been keeping me awake at night and things have been hurting constantly. BUT I’m really pleased to say that over the past week or so things have got back to my state of normal and I’m sleeping soundly at night again and feeling a lot more comfortable during the day.

This is a huge relief because it was starting to get me down if I’m  honest. I think it was just a blip after all. Thanks to sticking with me, I know my blog hasn’t been the most fun reading the last couple of weeks.

In other news, my family are starting to notice some improvement in the tightness of my muscles since I had my Botox injections done about a week-and-a-half ago.

I’m really happy today.

Botox and facing hard truths

Well, I’ve just got back from my Botox appointment and it went well. I’ve had the injections in both legs, arranged an appointment with my physio, my physio is going to try and arrange a joint appointment with myself, her and my orthotist to see what we can do to get me feeling comfortable in splints. She’s also going to book a service for my walking frame Martha.

My botox injections were done by my physio and I also saw my consultant when she popped into the room. I made sure I was honest and told them all about the extra pain I’ve been getting that have been keeping me  up at night, the fact that I seem to be tiring a lot faster than usual when I walk and not feeling like doing as much walking as normal. They listened really closely to what I had to say and then explained to me that quite a few people with Cerebral Palsy also find themselves feeling the same way in their 20s.

In a way, it was nice to know that I’m probably not alone in this, but it also felt daunting too. Doctors have told me in the past that I’ll start walking less as I get older and I’ve sort of made peace with that in my own way, but the reality is still something I can’t imagine.

Don’t worry, I think I’m still a long way from that point yet, but today I got one huge reality check and I don’t like it very much. The good thing about all this is that it’s made me more determined to work hard.

It might not always be easy, but that doesn’t mean I won’t try

Yesterday’s physio appointment

I went to see my physio yesterday so that we could discuss if my Boxtox injections I had earlier this month had made a difference. Before I went into the appointment, I knew that I was starting to notice some changes myself. I’m already starting to feel less tight and my muscles didn’t feel as tight as they had previously done when I was having physio. I felt slightly nervous going into the appointment because I really hoped that my physio would agree with me and I didn’t want to feel like I’d let anyone down, especially myself.

Well, I’m very pleased to report that she was impressed! She started doing lots of my stretches and told me that she was pleased, so I told her about all the hard work that my family have been putting in to help me get the most out of the injections and she seemed really happy about that too. They’ve been helping out with the ones that I find it very difficult to do by myself, and constantly reminding me to keep going through those that I can do. Believe me when I say this support makes a huge difference and helps me stay motivated.

She gave me some new exercises to try, neither of which I find very easy at the moment, but I’ll just have to keep going with them until it gets easier. Then we did some work where I walk and stand while holding onto a bar on either side of me. She also said that she was impressed with how straight I was standing up too when she got me to focus on doing that. I’m not a medical professional so I don’t know if this is down to the Botox or not, but I was still glad that she was pleased.

Needless to say, I left the appointment feeling very happy indeed.

Physio again

Wow, I can’t believe that my next physio appointment has rolled around already. Today I’m off there and my physio and I will discuss if we think my recent  Botox injections have worked, and how much of a difference they may be starting to make.

Since having them done I’ve been putting in a lot of work, with the help of my family, into my stretches. There are plenty that I can do for myself but there’s still some I need help with. Before I had them done, I was surprised at just how tight all my muscles were feeling and just how much discomfort doing my physio was causing me. It wasn’t a nice thing to have to acknowledge, but at the same time I felt it was a good wake-up call and motivator to put the work in.

I’ve noticed over the last few days that the stretches haven’t been as uncomfortable, so I’m hoping that that is a good sign.

I’m strangely nervous to hear what my physio thinks, but I’m hoping that she’ll be pleased. I’ll let you all know.

As I mentioned in my last post, I’ve now set up a Facebook page for View From a Walking Frame, which you can take a look at here.