In need of a stretch and starting on Baclofen

More and more often lately, I’ve been finding myself going to bed at night, not because I’m tired, but because I feel in need of a good stretch.

I’ve gone to bed mostly so that I can lay down on my front or my back and ease a lot of the tension in my muscles, which I’ve noticed has been getting worse at night lately.

When I went to see my consultant a few weeks ago, she suggested that I try a muscle relaxant called Baclofen  to see if this helps. I’m hoping that it will, but I’m going to try it out for a short while at first to see how I find it before I commit to it long term.

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Time to get the wheat bags out

I’m writing this post on Monday evening. I’ve spent most of today trying to keep warm, with varying degrees of success.

I spent most of the morning wearing my dressing gown over my clothes because it was cold. Then things got a little warmer, which I was grateful for because I had to head into town, but then by the time I got back it was so cold that I crawled under my duvet for a book with a while to take try heat up a bit.

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Cerebral Palsy in my dreams

Ever since I can remember I’ve always been the kind of person who can recall most of my dreams in quite a lot of detail.

The thing is, my dream ‘relationship’ (or whatever you want to call it), with my CP has always been a strange one.

When I’m in dreamland I’m still always aware that I’m disabled, but I don’t often have my wheelchair or my walking frame with me. I will often find myself being able to run, usually from people who are chasing me.

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The girl’s a night owl

I’m writing this post late at night. It’s 23:28 on Tuesday evening and I’d do all my writing at this time of day (night, whatever) if I could.

I’ve turned off the big light and my lamp is giving me just enough light to see my keyboard. There’s soft music playing in my headphones and I’m nice and warm and in those early stages of tiredness where you’re starting to wind down but are still alert enough to do stuff.

I don’t think I’ve ever liked mornings. I never quite know how stiff or achy I’m going to be when I wake up, or how long it’s going to take me to be able to do things.

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A trip to the bowling alley

Ready to roll: bowling with a ramp
Ready to roll: bowling with a ramp

Last weekend some of my family and I went bowling as a way of spending Mother’s Day together.

It’s something that I always enjoyed doing as a child and then started enjoying less as a teenager, because I became  more are more self-conscious about having to play by pushing the ball down a ramp. I often felt like I wasn’t properly taking part, or like as I was cheating by not actually throwing the ball.

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