VLOG: Getting Older and cerebral palsy

It worries me more and more these days.

 

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5 thoughts on “VLOG: Getting Older and cerebral palsy

  1. I can really relate to this as I have mild cp and these past couple of weeks I have been noticing it much more than ever. I have had really painful and tight muscles and I’ve felt really tired. My tiredness has got worse over the years as I have always been ‘on the go’ when I was younger, but now I struggle to get through the day without taking a nap. This worries me as well as I am only turning 17 in a couple of days, so I really don’t know what the future holds for me, regarding my cp. (I am also struggling with anxiety). So as you can see, you’re not alone. Stay positive xx

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  2. I’m 24 and have cp. I use a wheelchair and a rollater frame. I feel the same. I use strong painkillers and baclofen and another muscle relaxant . I have been advised by my consultant to take rests daily . Things are harder and I fell last night. HoĊµever staying active is key. Maybe ask for a referral to your local pain clinic they have helped me. Take one week at a time and distract your self with activities you like doing. There hasn’t been much research done for adults with cp. I run a support group online called living positively with cerebral palsy. Google it . Some of the posts from different users may help you.
    Chin up and hope you feel better soon. Rachael

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