The ‘down side’ to my night splints

My night splints
My night splints

People who’ve been reading this blog for a while now might know that I got a new pair of night splints a few months ago; and I’ve blogged about my love for them ever since. I wake up in the morning feeling like I’ve had a really good stretch without having to put in too much effort (besides remembering to get someone to put them on for me). I don’t have to find time to build wearing them into my day either. Needless to say; I think I’m in love. As long as I remember to put a pair of socks on so that the straps don’t rub my feet I couldn’t really find anything not to like.

Until now…

Just lately we’ve been having some really warm weather here to the point where I can walk around the house in bare feet; and I say this as someone who owns a pair of microwave socks because her feet are usually so cold. I love warm weather so I’ve been switching between bounding around like an excited puppy, eating loads of Ben and Jerry’s, and reading in the garden or our lovely and warm conservatory. Happy days! I love it. Until it’s time to go to sleep.

My Microwavable socks
My Microwavable socks

My night splints are also fully-lined on the inside, (that’s part of the reason I find them so comfy), but it also makes my feet really hot. Usually, I find having warm toes quite a novelty, but with the added heat it’s making them just that bit too toasty.

I’ve started sleeping with my feet poking out of the bed covers to try keep them cool, but the other day I had to admit defeat and take them off. I’m even thinking of wearing them during the day (I can also wear them when I’m resting if I want to) until it cools down a bit.

Still, I’m not going to complain that the sun is here. I’m going to enjoy it while I can!

Now, who wants an ice cream?

 

Battling with buses: a year on

Around this time last year I found myself trying to get used to using the bus on my own. This wasn’t something that I found easy, and it would make me very nervous. I don’t drive so I spend a lot of time on public transport and I found some types easier to deal with.

I mastered the train long before I felt confident enough to take the bus because I really wanted to make a surprise trip home from university for my dad’s birthday. Once I’d done it for the first time, I felt confident enough to do it again and again. It was like the world had opened up to me and I had more independence than ever before. It was wonderful and it also meant that I could take more trips back home when I started to miss my mother’s cooking.

Getting the bus felt like a whole other ball game to me because there were so many other things to consider than remembering to book my rail assistance 24hrs before I wanted to travel so that someone would be able to help me with the ramp. Buses brought with the other challenges. I had to worry about fitting my walking frame on the bus so that no one would trip over it, and if I had to able to be able to put it in that place for myself. I have seen many buses with a whole range of different layouts, some of which I find easier than others but I never know which one will turn up.

if I have to be anywhere by a certain time I need to get one or two buses earlier than the one that would get me there just about on time in case some turn up that don’t have enough space. This time last year the thought of boarding a bus without a friend or someone to help made me feel sick with nerves and I tried to avoid it as much as possible.

However, I am pleased to say that 12 months on, doing this doesn’t bother me too much anymore and I get the bus alone quite often, although my family will always try and meet me at the bus stop by our house when I get home again to help me get off. A lot of the drivers on my local route now recognise me and are always willing to help, as are a lot of the other passengers too, which is always lovely. I just try my best to avoid travelling at busier times and try to leave myself plenty of time to get to where I need to be so that I can be more relaxed.

If I know that I need to get a lot of shopping, or use my wheelchair instead of my walking frame, then I need to have someone with me. However, if I don’t need to carry a lot and will be using my frame, I know longer feel worried about having to go it alone.

I think that’s progress. I feel like I’ve gained so much more independence and I always find that to be one of the best feelings in the world.

Park life

On my recent  trip to London, I mentioned that my family, (especially my little sister), all helped me have a tonne of fun in the park and I have to say I think it was the highlight of my trip. I’ve been looking forward to writing this post for a long time, but because I’ve had so many appointments and other things going on to tell you all about, it’s had to wait a while.

Parks were a big part of my childhood for a long time. My mum abd dad would put up my walking frame and then we’d all walk to one of our local parks as a family. They’d help me play on things and make sure I didn’t hurt myself, (little did I know that I was also doing some form of physio in the process), and then we’d all walk home again. I’d often find this tiring, but it was so much fun that I didn’t care.

Fastforward quite a few years and playing in the park is something I don’t really do anymore, although I’m quite small and light so I can still do it if I want to, but I often worry about all the ways I can get hurt instead.

However, as soon as we got to this park in London my little sister wasted no time in pushing me really fast in my wheelchair up and down all the humps that I think are meant for people with bikes, scooters and other such things. Although I pretended I wasn’t too happy about this, I secretly had fun and some of the other people in the park were smiling and laughing along with us, which made it even nicer.

Then she asked me if I wanted to go on the swing with her. Of course, I said yes. The swing in question was a flying-saucer shaped one that you could sit in, so my mum’s new husband-to-be lifted me into it, and then my sister climbed in with me so she could make sure I didn’t fall out.

 

My sister and I on the swing
My sister and I on the swing

After that I climbed back into my wheelchair and she jokingly asked me if I wanted a go on the zipwire. I don’t think I’d be able to hold myself on a zipwire as it went flying through the air, but she said that if someone helped me get onto it she’d hold on to me while I sat on it while it wasn’t moving. I was having lots of fun and, not wanting to spoil it, I agreed.

On the zipwire
On the zipwire

I’d like to think that all of us were having fun by this point. Back into the wheelchair I went and my mum  started to push. She pointed to some bits of wood that were set out at different heights for people to walk on and she said she’d help me. I’ve written a post that introduced you all to my dad before, but now I’d also like to introduce you all to my mum too.

My mum and I
My mum and I

By this point I was feeling really adventurous so when mum’s husband-to-be pointed to some ropes that people could use to pull themselves up a grass hill with and asked me if I fancied a go there was no doubt that I did. He stood behind me every step of the way waiting to catch me if I fell. Mum stayed at the bottom with the camera, and my sister waited for me at the top and cheered me on. Sorry that my eyes are closed in the picture, but I think you get the point.

100_0110
Just getting started

It was hard. Really, really hard. My arms and legs ached all the way but I never once doubted that I’d make it to the top, no matter how long it took. Unfortunately, I didn’t time it, so I don’t know how long it did take me, but I did make it to the top. I made it! I was pretty proud of myself for it too.

Victory!
Victory!

And to think, my parents were told I might be able to manage to walk around a supermarket at the best…

Allow me to introduce…

Hi everyone, it’s the moment you’ve all been waiting for! I’ve chosen a name for my new wheelchair.

So, I would now like to introduce you all to…Agatha.

My new wheelchair Agatha

Don’t ask me why I’ve picked this name because I’m not entirely sure, but for some reason it just seemed to fit.

I’ve been out in the new chair a few times this weekend and I’m really happy with it. It’s comfy to sit in and easy enough for me to push myself. It’s going to take a while to get used to the fact that it’s slightly bigger than my old one though!

I’ve also found that when I sit in this one, I see the world from a slightly different angle than I did previously, and that feels a bit strange at the moment, but I’m sure I’ll get used to that in time.

My new wheelchair has arrived

I kind of already mentioned what today’s post would be about on View From a Walking Frame’s Facebook page and on my Twitter, but I am now pleased to tell you all that my new wheelchair has arrived.

It looks pretty much like my old one, which was silver and black, but I don’t mind that because I always liked the way that one looked anyway. Not that it really matters if I like the colour at the end of the day as long as the chair can do its job, but it’s always a nice little bonus.

I haven’t really had much of a chance to have a go a pushing myself around it in yet because it’s quite rainy and wet here, but I’ve had a quick try and wheeling myself around the kitchen and it seems like it’s going to be fairly easy for me to handle.

Just in case you’re wondering, I haven’t picked out a name for my new wheelchair yet, but as soon as I do, I’ll let you all know. Feel free to leave your suggestions.

In other news, I’ve also got my night splints back with my walking grip now re-glued back on too which I’m also really pleased about because I enjoy wearing those.

That’s it for today, just short and sweet. Have a good day guys,

Nic