Tag: disability

So Nic what have you been doing?

Good question,  and the answer to that is so. Much. Stuff. I’m not even sure where to start.  November is slipping through my fingers  and before I know it it’ll be Christmas and the New Year. I’m pretty sure I’m not the only one struggling to get my head round the fact that 2014 is almost over.

I’ve had a couple of appointments over these last two weeks that have gone rather well. I managed to see my physio and my consultant last week who think they know what’s been causing my hip pain. They want me to try a high dose of ibuprofen for a couple of weeks.  If that doesn’t work then they want me to get a referral to the pain clinic. I’m hoping it won’t come to that but it’s a start.

I’ve just got back from being recast for a new splint too.

I’ve almost reached my goal of writing 50000 words of a novel for national novel writing month now too!

A bit of a blip

Well guys all I can say if that I’m not even really sure where to start with today’s post. I fully intended to update you all a bit more about that hip pain that’s been bothering me for the last six months or so and the x-rays that I had done because of it, but then life got in the way. Well, by life I mean that I found myself contending with hip pain that was making me wish that someone could remove my left leg from my hip joint for a couple of hours just to give me a break, a pretty painful ear infection that felt me feeling pretty yucky, and to top it all off I’ve got a wisdom tooth trying to come through. It’s been cutting its way through my gum on and off since my first year at university (otherwise known as the end of 2009) so part of me wishes it would just hurry up and get a move on.

So, anyway, moaning aside, I spent most of last week feeling pretty drained and a bit grumpy and I put whatever brain power I had into trying to keep on top of my goal to take part in National Novel Writing Month, which challenges people to write 50,000 words of fiction in the 30 days of November. I won’t lie, I did get a little behind schedule (okay, quite a bit behind) in the middle of last week, but somehow, and don’t ask me how, I’ve managed to get myself back on track. Yay me!

The novel idea that I’m working on trying to make a good start on this November is about a 16 year-old living with Cerebral Palsy as she navigates the world of growing up, relationships and dealing with the impact her disability has on my life. While the character herself isn’t me in fictional form or anything, I’ve spent a lot of time thinking about my own disability over the last few days. This has been even more prominent  seeing as I think I’ve had more ‘bad CP days’ over the last few months than I’ve had in the last few years and I think a lot of you know that I’m not very happy about that but I’m trying to deal with it and keep going, although I really, really want to get my hip sorted out my because it’s really, really starting to tick me off now to say the least.

I still don’t know if anything will ever come of the writing that I’m working on right now. Maybe it will, maybe it won’t. I think it would be nice if it did, but it’s too early for me to say if I think it will be good enough to show to the rest of the world one day or not. Right now, it’s helping me out in more ways that one so that’s good enough for the moment, as for the future, we’ll just have to wait and see.

in other news my hip x-ray came back fine, which is a good thing and I’m really happy about it obviously, but it still doesn’t answer the question for why it’s been playing up, but I’m seeing my physio later this week so hopefully we can come up with a plan to find out.

Sorry if this post has been a bit of a  ramble, but thanks for listening, I really appreciate it

Love,

Nic xx

The waiting game

Let me kick off this post by saying that I’m sorry this post has been a long time coming, well probably not as long as it feels like it’s been to me, bu lots of things have been going on round here and I needed some time to wrap my head around it before I wrote about it.

So, as some of you may have seen on the blog’s Facebook page I’ve had to have a hip x-ray for the hip pain that has been keeping me awake at night for at least six months now because it’s got to the point where it is aching constantly through the day too.

At the recommendation of a physio, I’ve been using a tense machine for the last few days and that’s helped a lot, but I’m still waiting for the x-ray results in the hope that will finally give us some answers. The uncertainty isn’t nice but I’m trying to stay hopeful that it’s nothing too bad, but whatever it is, I’ll deal with it.

I’ve also got appointments with orthotics and physio this month so I’m hoping we can all work together to put something into place that will help

On a lighter note, as some of you may have also noticed, I’m taking part in National Novel Writing Month this month (something which challenges participants to write 50,000 words of a novel in the 30 days of November) which is keeping me pretty busy. I’ve decided to write a story about a 16-year-old girl with Cerebral Palsy.  Who knows, maybe you’ll all get to read it. I want to talk about that some more in another post. It’s the first time I’ve written a character that has the same disability as me so it’s being quite interesting for lots of reasons.

Thanks for sticking with me guys. I’ll hopefully have news for you all about my hip soon.

NEW VLOG: Video response to Robyn Lambird (A T-rex Life) would I take a cure for my Cerebral Palsy?

This is something that I’ve discussed so many times already on my blog, but when I came across Robyn’s video about the same topic on her YouTube channel; A T-Rex Life, I decided to do a video response of my own.

Please go and check out her videos, I’ve just discovered them recently.

In the meantime, here’s what I would personally do.

NEW VLOG: About last week’s activities

Hi guys,

Sorry that today has been a double post day, I don’t really like to do that but I’ve been so busy lately and have so much to tell you in quite a small scale of time that it’s going to be better to do it this way.

 

Here’s a vlog that I posted on YouTube about the gig I went to last weekend and also my visit to the West Yorkshire Playhouse. I know that I haven’t mentioned my theatre trip on here yet but I’m hoping to do a post on it this week,

 

Enjoy guys