Tag: Cerebral Palsy

Starting Baclofen for cerebral palsy

You may have seen on social media that I finally took the plunge and started taking Baclofen a couple of weeks ago. It’s basically a muscle relaxant my consultant prescribed me quite a few months ago to help with the increasing number of bad cerebral palsy days I was having.

She told me it was something I could basically start and stop taking as I need to because it would be out of my system within a few hours. She suggested a I started on a smaller dose twice a day, but I could increase that to three times a day if needed. She also suggested an amount I could up the dose to if necessary.

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Shopping and cerebral palsy

In case you haven’t noticed yet, I love to go shopping. Well, unless I’m going shopping for shoes that is. I’ve mentioned these things quite a lot in the past, but I’m not sure I’ve ever really talked about the difficulties I face when going to the till to pay for my things.

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Things I do on bad CP nights

I’ve been having quite a few bad CP nights lately so I thought I’d share some of the things I do when I’m having one:

  • Keep moving around – I hope I can get comfy if I try lying in enough different positions
  • Lots of physio
  • Get up and do something productive – When I have a bad cerebral palsy night I know there’s a pretty good chance I’ll sleep in the next day to compensate so I like to try and do something productive because I find that makes me feel a lot less stressed the next day. Plus, it gives me something else to focus on besides the pain, which can sometimes help make me feel better.
  • Read – so many books, so little time
  • Binge watch Netflix

What do you do on bad CP nights?