Botox, orthotics & Hip Pain: a mini round-up

Okay, okay. I admit it: I knew it had been a while since I updated you guys on how things were going, but it turns out that it’s been almost a month!  I’ve had a fair bit going on so I thought I’d do one of my mini round-up posts to bring you up to speed.

Botox injections

I saw my consultant for my latest round of botox injections. I have these in my legs to try and ease the muscle tightness caused by my cerebral palsy.  The appointment also gave me chance to talk to my consultant about my increasing hip pain. She agreed that we need to do something to try and level off my pelvis, so she sent me back to orthotics to get a raise put on one of my shoes. If that hasn’t made much difference by the next time I see her (in about four months, this time) she’s going to look at referring me back to orthopedics to see if they have any suggestions. I haven’t seen anyone from that department once I’d finished having all my hip surgery just before I went to university, so that would be interesting but scary at the same time.

Orthotics

After seeing my consultant I was sent an appointment to go back to orthotics which I always dread (orthoics I go waaay back). I saw an orthotist I’ve never met before. She seemed nice and measured me up for a new pair of calipers (similar to the ones pictured) to go along with the shoes when I told her I don’t have a spare set. The new shoes will have a raise on one side, and she’s given me a wedge to put inside my current shoe until the new ones arrive.

Callipers
My callipers

I noticed straight away that it made my hip feel much more comfortable when I’m standing or walking but it hasn’t helped when I’ve been sitting and laying down. Maybe it will in time, but I’m not sure.

My back pain has also been much worse in the last few days. I’ll just need to see if this is a standard phase in my ‘pain cycle‘ or if it will last longer than that as we try and change my posture.

2016: Where do I start?

So much has been going on over these last couple of weeks regarding my cerebral palsy that I haven’t had the chance to tell you about yet. To be honest I’m not entiin lrely sure where to start with all of it it, so I guess I’ll just dive in and wish you all a happy new year filled with health and happiness and take it  from there. It’s probably going to be better if I do the rest in list form, so here we go:

A new walking frame

Some of you may remember that my physio and I started the process of getting me a new walking frame as my last one (known as Martha) was over two years old and starting to show signs of wear and tear.

On the day before Christmas Eve my wait was finally over and I was given a brand new one. I said a fond farewell to old one, Martha, and welcomed my new one (named Ivy) into my world. I’ll take photographs for you all soon but she’s exactally the same make and model as Martha -a Nimbo frame –  so she doesn’t look any different, well apart from looking a bit cleaner and less scratched, but that won’t last long.

However, she’s in so much better condition than my old one (the wheels were getting wonky) that it moves like a dream and I feel like I’m going everywhere at top speed.

Acupuncture

It’s been just over a week since my first acupuncture appointment. I’ve already had a second and I’ve got a third booked in for next week. I’ll admit that even though I’d never had acupuncture before I went into this treatment with high hopes for it because I know quite a few who’ve had it and been really pleased with the results.

I haven’t been disappointed. Even after my first session the hip pain that I’m having the treatment done to try and combat is loads better. Longer-term readers of this blog will know that my hip has been hurting on and off for a couple of years now, with no one knowing what’s causing it, but it has eased so much already.

The pain doesn’t really bother me during the day anymore and it’s not as bad at night now either.

My new callipers

Some of you might remember that I made a YouTube video about my new calipers to wear on the days when there’s no one around to help me put my splints on. I was nervous about it because I’ve had them before and they didn’t work all that well, but these ones are slightly different and I haven’t had any problems so far!

 

Well, I think that’s everything I have to tell you for now. Thanks for sticking with me and reading this blog and watching my videos. It means a lot to me.

Happy new year,

Love,

Nic x

Trying more calipers

My callipers
My calipers

Long time readers of this blog my remember that I tried wearing calipers as an alternative to splints a couple of years ago.

While they were better for me in some ways, like I could get them on and off myself, I blistered quite badly if I wore them for too long and so in the end I went back to my splints.

Continue reading “Trying more calipers”