2016: Where do I start?

So much has been going on over these last couple of weeks regarding my cerebral palsy that I haven’t had the chance to tell you about yet. To be honest I’m not entiin lrely sure where to start with all of it it, so I guess I’ll just dive in and wish you all a happy new year filled with health and happiness and take it  from there. It’s probably going to be better if I do the rest in list form, so here we go:

A new walking frame

Some of you may remember that my physio and I started the process of getting me a new walking frame as my last one (known as Martha) was over two years old and starting to show signs of wear and tear.

On the day before Christmas Eve my wait was finally over and I was given a brand new one. I said a fond farewell to old one, Martha, and welcomed my new one (named Ivy) into my world. I’ll take photographs for you all soon but she’s exactally the same make and model as Martha -a Nimbo frame –  so she doesn’t look any different, well apart from looking a bit cleaner and less scratched, but that won’t last long.

However, she’s in so much better condition than my old one (the wheels were getting wonky) that it moves like a dream and I feel like I’m going everywhere at top speed.

Acupuncture

It’s been just over a week since my first acupuncture appointment. I’ve already had a second and I’ve got a third booked in for next week. I’ll admit that even though I’d never had acupuncture before I went into this treatment with high hopes for it because I know quite a few who’ve had it and been really pleased with the results.

I haven’t been disappointed. Even after my first session the hip pain that I’m having the treatment done to try and combat is loads better. Longer-term readers of this blog will know that my hip has been hurting on and off for a couple of years now, with no one knowing what’s causing it, but it has eased so much already.

The pain doesn’t really bother me during the day anymore and it’s not as bad at night now either.

My new callipers

Some of you might remember that I made a YouTube video about my new calipers to wear on the days when there’s no one around to help me put my splints on. I was nervous about it because I’ve had them before and they didn’t work all that well, but these ones are slightly different and I haven’t had any problems so far!

 

Well, I think that’s everything I have to tell you for now. Thanks for sticking with me and reading this blog and watching my videos. It means a lot to me.

Happy new year,

Love,

Nic x

My first acupuncture appointment

Hey guys,

I’ve just got home for my first-ever acupuncture appointment, and by now you probably know that I was a bit apprehensive about the whole thing:

Now though, I have no idea why I was so nervous. The lady doing the treatment was lovely, and we had a long chat before she even got any needles out about the hip pain that I would be having it for; like what things made it worse and what things seemed to sooth it. We talked about my hobbies and I told her about this blog and the fact that I make videos on YouTube. It all made me feel at ease.

I had no idea how many needles she would use (although needles themselves don’t actually bother me tbh) but in the end I think she only used two. Neither of them hurt.  It did feel a bit odd, especially when she was turning them, but it wasn’t a bad sensation. She left them in for ten minutes, and then, because I was tolerating them well, she decided to leave them in for another ten and then we were done.

I’m going back next week, but I’m not going to be nervous this time.

Acupuncture appointment nerves

So I told you the other day that my physio had decided to refer me for some acupuncture to try and combat the pain I’ve had in the ball of my left hip joint on-and-off for the last few years.

Well, the lady rag me the other day to confirm the appointment next week and now I’m really nervous. I’ve never had it done before so I don’t know what to expect, but a few people have told me they’ve had good results.

The other thing I’m nervous about, is that because of where the pain is , I will have to have it done in my underwear and be covered by blankets. That’s making me really self-conscious. Have an of you had acupuncture. How did you find it?

More Botox and new walking frame update

I’m putting Fun Fact Friday on hold for another week so that I can update you all on yesterday’s hospital appointment. Honestly, I don’t think it could have come at a better time for me, with all the pain I’ve been having the last few weeks.

I met with my physio and my consultant, told them about the issues, and that my recurring, cause-unknown hip pain had returned again and is back to keeping me awake at night. I roll over constantly trying to get comfy but it takes hours. I feel really sorry for Rob because it makes it hard for him to get any sleep too.

They decided to prescribe  me some stronger painkillers for when I need them, and they’re going to arrange for me to have some acupuncture. I’ve never tried that before but I know people who’ve had it and say they’ve had great results. I’d love to know if you guys have had any and how you found it.

I had some Botox injections in both legs too; in both my hamstrings and in another muscle that I don’t have a clue how to spell. Sorry. My physio tried a new technique when she was injecting the muscle I can’t spell so she’s interested to see if that makes a difference.

Oh, and apparently I should finally have my new walking frame soon. Apparently it’s at the hospital, they’re just waiting for the right department to build it up now.