Here’s a new cerebral palsy update video where I talk about pain, hospital appointments, Baclofen and more!
Disclaimer: I have not been paid to write this post. I was invited to attend this Bloggers Breakfast event by The Unlimited Company from Simplyhealth, where I was given food, drink and a free opening day goodie bag – more on that last part later!
I’ll admit that I had no idea what to expect when I accepted the invitation to go and see the new The Unlimited Company Store in Kirkstall Bridge Shopping Park, Leeds. I came away feeling really impressed and encouraged by what the future could hold for me as a disabled person.
Not only did they sell items that would make life easier for people with all kinds of disabilities, not just physical ones like mine, but they have a sensory room and a huge disabled toilet with a hoist, adult-sized changing table, and movable sink. And we all know how I often have some strong opinions on disabled loos.
I think the thing that appealed to me the most was that the shop has a resident Occupational Therapist who is on-hand to offer help and advice to anyone who needs it. She spent ages showing me a lot of things they had for people to look at and try out.
There are just so many things that I didn’t know existed. They have an adapted kitchen to show people what they can do now, and just how stylish they are. It didn’t have a ‘clinical’ feel to it at all, as many of you probably agree some of these things do have. I felt really optimistic about what my ideal home could look like in the future. Well, if I ever manage to get on the property ladder, that is. That’s a debate for another time.
Remember that rant I had about clothes shopping with a disability? Well The Unlimited Company even had that covered too, because they stock clothes from a company called The Able Label. I’ve never heard of these guys before, but I’m definitely going to be checking them out. They make clothes with velcro instead of buttons and zips! How amazing is that?
If all of this wasn’t enough, I was lucky enough to be able to meet members of TeamBRIT. I’m not going to lie, sport would not be my strongest subject on a quiz show, but I have to say that car looks very cool. And people were impressed by how my walking frame Ivy and I had managed to colour-coordinate with it. I wish I could say I’d planned it that way all along, but I’m not that good.
My goody bag had a TeamBrit cap in it too, (and they gave me an extra one for Rob, thanks guys) this totally makes me an honorary member of the team now, right? Right?
They also gave me a really cute mini-hot water bottle which will be a huge help with my pelvis pain, or any other pain for that matter.
And what was the hashtag of the day, I hear you ask.
Speaks for itself, doesn’t it?
FIND OUT MORE:
If you want to find out more then I’m going include social media links below:
The Unlimited Company
The Able Label
This might seem like a really obvious thing to say, but blogging so openly about my own life with cerebral palsy is hard.
Guys, it finally happened.
After weeks and weeks of high to moderate pain days, I finally had a low one. My “normal” pain days are low ones.
Yesterday things were back to my normal for the first time in ages!
I know this is all going to sound rather dramatic, but after being in so much more pain than usual for so long, I was starting to wonder if I would ever have a low pain day again.
God, I’m so, so happy right now.
Today isn’t shaping up too badly either, well, not pain-wise anyway. Obviously that could all change by later on tonight, but I’m going to enjoy it while it lasts. Even if tonight ends up being a bad CP night, for now a day and a half is enough.
Good days are still possible, and that’s all that matters.
Love, Nic xx
I decided that it was time I talked about all the pain my cerebral palsy has been causing me over on my YouTube channel:
Hello and welcome to today’s edition of Nic is in Pain and Feeling Very Sorry for Herself.
It case he title of this post didn’t give it away, the culprit this time is my pelvis. This is kinda unusual for me. My pelvis is not one of the body parts/ muscles that like to give a hard time, so I don’t really know what to do about it.
The pain kept me awake almost every night this week and I think it did keep me away from sleep every night last week. Getting comfortable is just impossible, and I’ve reached the point now where I’m tempted to give up on trying to sleep at night all together.
I think I’d rather just nap during the day when I’m tired enough to rather than try and force myself to stay awake all day and not be able to drop off at bed time, y’know?
Sleepless nights are unpleasant, but bad cerebral palsy nights where I’m in pain and everyone is the house is sleeping are just so freaking lonely.
I don’t usually cry over physical pain, but I’ve come close this last fortnight or so. I don’t know how many more bad CP nights I can take.
How are you all doing?
#mentalhealthawarenessmonth so I thought I’d make a mental health update. I’m not doing great TBH. I hope this video goes some way towards explaining why I haven’t been at the top of my blogging game lately.