Hi everyone,
I hope you’re all well. I got my new wheat bags that my lovely friend Donna made me some Very Hungry Caterpillar covers for, so I thought I’d show you them.
They’re the perfect size to fit under my knees. My hamstrings are always tight so that is really handy for me.
I owe Donna an apology because I meant to do this post when she sent the to me a couple of weeks ago, but life had other ideas. Sorry Donna, and thanks again!
Last week I went back to orthotics to get my left AFO splints looked at. It still do0esn’t fit right and still hurts to walk and stand in. I’ve been back about it a few times now and they’ve tried tinkering with it, and when I was still uncomfortable, they recast me for a new one. However, the new one hurt more than the old one, so I went back on Friday to have it looked at.
My orthortist ha sent it away to see if the people at the factory can make it any wider so it will feel more comfortable for me. I’ll have to wait a couple of weeks to get it back so we’ll just have to wait and see.
In the meantime, I asked him if I could wear my right splint , (which fits properly and I don’t even know I have it on most of the time), and one of my other shoes on my left foot. It would look pretty silly. I’d be wearing odd shoes for starters, and I have to go up not one, not two, but three sizes to fit my splints in, but that wouldn’t bother me if it helped in the long run. I already walk around with a bright blue frame that I call Martha in tow, so miss-matched shoes wouldn’t phase me.
My orthotist said that I could try it, but I might feel a little unbalanced so it might not work out. I think I’m going to try it and see how it feels.
I’ve told you all time and time again how much I value the support I get from my family and friends. I value it more than I think they’ll ever know. I’d love to be able to repay them all, but I have no idea how.
This week my awesome friend Donna, (who blogs over at craftyquiltsblog), has made me some really cool Very Hungry Caterpillar wheat bag covers. I’m really greatful because I use wheat bags a lot to try and get rid of or lessen any aches and pains I get.
To find out how she did it and what they look like, go and check out her post about it.
Thanks again Donna, you rock!
This weekend, I did something I haven’t done since I was small. In fact, I don’t even remember the last time I did it it was so long ago, but I’m pretty sure it must have happened once.
I went out in a dress, but didn’t wear tights.
This may sound like no big deal to some of you, but it kind of feels like one to me. I hate the way my legs look. Not because of the scars from the operations I’ve had, but because they look weak and scrawny, and my poor circulation in them and my feet means that they always look a slightly blue of grey colour where my arms do not.
I’m a jeans and t-shirt kind of girl most of the time, but when I do decide that I want to wear shorts or a dress or a shirt, I always wear tights, whatever the weather. The thicker they are, the happier I feel.
However, the UK has been having some lovely hot sunshine of late. A lot of the people I meet seem to say they’d be happier if it was a little cooler but Im quite happy for things to stay as they are for a while. I find it easier to move around when it’s warm and I seize up in the cold. But at the weekend it was so warm that I had a feeling I would cook in my thick, wooly tights, so I made a decision. Rather than be uncomfortably hot, I would go bare-legged and if anyone didn’t like it, then that was their problem.
I felt a bit self-conscious at first, but I soon forgot about and just focused on having fun shopping. I occasionally caught sight of myself in a mirror which brought it back to the forefront of my mind again, but for the most part, I forgot all about it.
I felt a sense of acomplishment when I got home again. I’m glad I did it but I’m not sure I could make a habit of it.
Guys, can I be honest with you: I am tired, physically and emotionally. In fact, I am beyond tired and I don’t like it.
Over the last couple of weeks, I’ve been getting a lot more aches and pains that normal, especially for this time of year. These things are usually worse in the winter when it’s cold, but the UK has been having some lovely warm weather lately. When this happens, I try and spend as little time in the house as possible, but not this time. I’ve had no energy what so ever lately. The majority of my days are punctuated with naps, and some times more than one a day.
I want to be in the sunlight, but the thought of moving more than necessary makes me want to weep. I have an errand that I’ve been meaning to run all week, but I just can’t face it. My first thought when I wake up in the morning is “everything aches”. My Cerebral Palsy is on my mind far more than I would like these days. It feels like it’s trying to show me who’s boss, and what’s worse is that, right now, it’s like it’s winning. I want to fight but I just can’t seem to.
This is not like me. I think anyone whose been reading this blog a while could tell you that. I know they’re tonnes of people who are far worse off than me, but I feel like I need to tell you all that it’s getting me down.
Does that make me weak?
Does that make me ungrateful?
Does that make me even weaker?
I keep thinking about booking myself in for a massage or something, but I’ve never been for one before, and part of me doesn’t like the idea of going for one. I’m not entirely sure why this is. Maybe it’s because it will mean that by doing that I have to face up to what’s going on? Maybe it’s because another person will then feel the tightness in my muscles? That’s an unsettling thought.
Do you guys go through phases like this? How do you deal with them?
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