Category: Uncategorized

A different kind of pain

I have a lot of different kinds of pain because of my cerebral palsy, but I get some of them more often than others.

The ones I think I have the most often are probably achy hamstrings, hip pain, neckache and backache, but over this past week or so I have been getting a couple of different pains and I’m not really sure how to deal with them.

Just lately I’ve been getting pins and needles-style pains and cramps under the big scars on my hips and I’ve been getting pins and needles and cramps in my legs when I walk.

It kept me awake last night too.

I’ve started taking my Baclofen to try help this.

This is probably going sound really strange, but this morning I woke up without any of these new pains but I had backache and neckache, and I was kind of relieved because these are ones that I have most often and I know how I can deal with them.

However, the hip pain did come back once I’d been awake a little bit and now I’m trying to make sure it doesn’t get too bad.

Do any of you ever get new aches or pains and how do you work out what to do.

Fun fact Friday [ 54]

Hello and welcome to Fun Fact Friday where I share facts about myself that aren’t linked to my cerebral palsy.

It’s been a while since I did one of these. Because I suck, but I thought I’d let you know that I’ve bought Christmas cards and another present today.  I’m still no where near ready for the big day. Though.  I like to be almost done by now.

How about you?

Motivation nose-dive

I feel a bit guilty because today’s blog post isn’t really disability-related. I guess it’s going to be one of those general life update-y thingys where I end up telling you all what’s going on in Nicland and probably asking for advice.

These last couple of months have been mega busy, and busy is great. I’m the kind of person who measures whether I’ve had a good or bad day by just how much or how little I’m managed to get done. Not to blow my own trumpet, but I think I’m generally quite good at keeping myself motivated because of this.

I mean, believe it or not, I’ve been writing this blog on a pretty regular basis for about 2 and a half years now, and I realised a few weeks ago that I’ve also been regularly uploading YouTube videos for a year too. Throw in the fact that I’m currently taking part in National Novel Writing Month and aiming to write 50,000 words of a novel in the thirty days of November, I should be so happy I have so many things to be getting on with that I should be bouncing.

Yet, I’m not.

These past few days I’ve wanted to stay snuggled up in the warmth of my bed, binge-watching Netflix until I lose all track of time. I don’t feel like I’ve been posting on here and I feel bad about that. Sometimes I really can’t stand the thought of sitting at my desk to work.

Sometimes I work in bed instead, but it’s not a habit I really want to get into.

I think some of it may be down to the changing seasons. It’s getting darker earlier and cold and my pajamas as some of the warmest clothes I own, The fact that the summer weather is giving strong winds, and the snow and ice we’ll probably be be getting soon, is making it harder to go out isn’t helping either.

I’ve barely started my Christmas shopping and i usually like to have it all done by the December rush.

Do you struggle to stay motivated during this time of the year? What do you do?

More than one at a time

I’ve certainly been feeling a lot tighter in just about all of my muscles lately. My legs and back are the main culprits, but my neck is not especially happy at the moment either.

Part of it I think is the cold, and the other big factor could be that I haven’t been leaving the house as much of late either. This means less walking and more time sitting hunched over a laptop, and trying to remember to break my days up by good long sitting to stretch out my legs and also give my back a different kind of support.

More and more of my days will probably be like this over the next few months as winter gets closer and closer and brings with it the ice and snow and cold and all those other things I love so very much.

(I came to the conclusion a long time ago that snow if one of the most physically disabling things out there for me.)

I’ll probably spend more and more time cuddling a wheat bag, both to help me keep warm and to try and keep my body a bit happy with me, and I think it’s getting to the time of year now where I’m going to need to use more than one at a time.

Thankfully, I’m not the only one who uses them in my house so we have a pretty large collection of them in all different shapes and sizes, so I think I’m going to go and heat two up; one for my back and one for my legs.

My neck would probably appreciate one too if I’m being honest, but then I think I might get a bit too hot.