Once a year, I have an appointment at a clinic with various medical professionals, from doctors, to physiotherapists, and occupational therapists. My parents come along  for the ride too and we all discuss my progress over the last 12 months, and what we can do to make sure I keep improving in the 12 months ahead.

I’ve got butterflies in my tummy because that’s where I’ll be going tomorrow, and I always feel slightly nervous about what they might suggest. In the past there have been things like returning to using the AFO-style splints that I used to wear, to swapping these for my current callipers, and having Botulinum Toxin injected into my legs to try and make the muscles less tight. After those there is some intensive physio that I have to do to get the most out of them, but I’ve always found that they’ve worked well for me.

I’m sitting here trying to up with a list of things I want to bring up at the appointment, I have a few things already, but Mum and I are going to put our heads together and try come up with some more before we go , because we might as well ask all our questions in one go.

I’m nervous because I don’t know what (if anything) will be suggested. I always wonder if they’ll suggest some kind of treatments that I’ve never tried before. That thought always makes me feel a bit uneasy, but if they think that it will help me for the better in the long run, I will more than likely agree to it.

Wish me luck!