The Surgery Diaries

One of the questions that I dread being asked most at a job interview or on any kind of application form is the one that asks me about my biggest achievement in life so far. You see, the thing is that I always think that I should pick something that isn’t related in some way to my Cerebral Palsy, and yet I can’t help it.

When someone presses me for this piece of information my instinct always goes to one of two answers: getting through my hip operations and the one that followed where the stretched all the muscles in my legs afterwards, or the  fact that I managed to cope without the daily help of my folks when I went to uni. I know it’s wrong but I always feel like this isn’t quite what the interviewer is looking for, but to me they’re still big milestones nonetheless. I usually go for option one and tell them about the surgery.

Sometime this August, I don’t know the exact date anymore, marks six years since I had my first CP-related op at the age of 16. This was the bone bit, I was offered the operation because the way I stood at the time had caused both my kneecaps to twist inwards, so they wanted to break my hips and femurs bones so that they could be reset and face outwards again. Although I was nervous I’d agreed instantly. It would be worth all the pain that I was getting pretty much all over as a result of my posture. I knew that I wouldn’t be allowed to stand up even for six weeks after the first part and that things would still be slow going for ages after the muscle bit. It would be ages before I could walk unaided again without someone or something supporting me.  It wasn’t going to be an easy ride, we all knew that.

At the time I had prepared myself for so many things, but I didn’t realise at the time that there was so much I hadn’t considered like the fact that I’d have to move my bedroom downstairs, use a commode instead of a toilet, and that sitting up would be way too much effort in the first few days. It seems strange that I didn’t think about all of this at the time, but I threw myself into passing my school exams that were happening beforehand and decided that I’d worry about the other stuff after that.

Over the course of this month, I’ll be doing a series of posts talking about how I felt during this time, the things we did as a family to get through it. These updates might take a more serious tone that I usually try and go for when I’m writing on here, but I’ll try and keep focus on the funny things that happened too – believe me there were many- although I’m more entirely  I can share all of them here.

Are you sitting comfortably? Then tomorrow I’ll begin.

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11 thoughts on “The Surgery Diaries

  1. this is awesome and you write about things i hadn’t considered! i too had to move my bed downstairs and i had to be carried upstairs and to sit on a bench in order to shower (because i couldn’t stand up). this has brought back so many memories that i can write about. thank you!

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    1. Thank you. I’m gald a gave you some new ideas, I really didn’t realise just how much would have to chnage in the first few months, but I’d still have agreed to it all the same!

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  2. I seem to be reading these in a backwards order LOL (typical of me!). As a mum of a younger child I am interested to know if the surgeries DID make the difference you had hoped for and that they (the medicos) told you it would make? And at the end of the day was it all worth it???

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    1. Yes! They worked and they made a huge, huge difference. The medics seemed amazed by just how well it did work. I can walk better and longer than I did before and my family and I would do it all over again if we had to. It was tough but I have no regrets 🙂

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  3. I didn’t know a surgery like that was possible. When I was 18, before my pain started, I asked an orthopedic what we could do about my knee turning in (just because I didn’t like how it looked), he looked at me like I was crazy and said “what do you mean?” I’m not sure if he meant that we couldn’t do anything, or if he didn’t know what I was talking about with my knee…
    I think I need that surgery! I have sooo much pain in my legs and hips. They’d probably tell me I’m too old though.

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    1. My left one was quite bad at the time and my right one was on the way to catching up. They broke my hips and feurs and pinned them in a metal plate (which I’ve since had removed).

      I’m sorry that your knees turn in too and I’m sorry about the pain. I hope that somebody will do something that can help you.

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      1. Thank you 🙂 The surgery sounds very painful, but it would be better to go through it for a time if it means less pain in the long run. I don’t have insurance right now, and it usually takes seeing a few different doctors to get anywhere, so I’ll wait until I have insurance to try.

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