The wind around my knees

If you’ve ever watched this video I made about learning to love my body a little while ago, then you’ll remember that I really hate showing my legs, in public and at home, if I’m being honest.

During last year’s heatwave, (which probably lasted about three days to be fair), I did leave the house in shorts without tights, but I don’t mind admitting that I stood in front of my wardrobe and cried beforehand because I was so nervous about it.

Fast-forward to 2016 and this year’s heatwave (which has been going on for a week so far!) is even hotter last year and I decided that I was going to wear my denim shorts and try not feel bad about it.

I was so surprised when I actually managed not to get so anxious that I cried (yes!). but what surprised me most of all was that I loved the feeling of the breeze about my knees. It was so refreshing and so strange because I’m just not used to it at all. Don’t get me wrong, it’s not been so nice that I want to do it all the time, but still.

This is going to sound really stupid but I’m proud of myself.

Maybe I don’t need to be so scared of not wearing tights?


Struggling in the heat

This year has been a strange one for me. Usually when it’s warm I find it a lot easier to do things than when it’s cold. I usually ache less too, which is also nice.

However, lately I’ve been noticing that things are quite different. Take the day I’m writing this post for example (yesterday for you guys). It’s boiling. I’m never one to say it’s too hot, but today I think it pretty much is. I went for a really quick walk and I really struggled with it because I was so warm. It took a lot more energy out of me that a journey of that length would usually have done, and I’ve noticed it more and more this year, even though I don’t think it’s been any hotter than last year. I was fine then. In fact, I loved the heat last year.

Do any of you struggle with the heat? How do you cope?

Fun Fact Friday [40]

Hello and welcome to Fun Fact Friday, the place where I share facts about myself that aren’t linked to my Cerebral Palsy.

I have a feeling a lot of you will be saying ‘yeah, me too’ when you read today’s little fun fact.

Did you know that I get Hay Fever in the summer? I didn’t get it when i was younger, but in the summer I took my A-levels it decided to put in an appearance and has done every year since.

It makes me sneeze, gives me a runny nose, and also makes me itch like crazy,especially on my arms and sometimes my face too. Oh, and don’t get me started on the itchy eye thing…

It seems to be grass and flowers that set me off the most. On certain days, it seems like I can taste the pollen in the air too, and feel it on my skin.

Do any of you get that too?

The ‘down side’ to my night splints

My night splints
My night splints

People who’ve been reading this blog for a while now might know that I got a new pair of night splints a few months ago; and I’ve blogged about my love for them ever since. I wake up in the morning feeling like I’ve had a really good stretch without having to put in too much effort (besides remembering to get someone to put them on for me). I don’t have to find time to build wearing them into my day either. Needless to say; I think I’m in love. As long as I remember to put a pair of socks on so that the straps don’t rub my feet I couldn’t really find anything not to like.

Until now…

Just lately we’ve been having some really warm weather here to the point where I can walk around the house in bare feet; and I say this as someone who owns a pair of microwave socks because her feet are usually so cold. I love warm weather so I’ve been switching between bounding around like an excited puppy, eating loads of Ben and Jerry’s, and reading in the garden or our lovely and warm conservatory. Happy days! I love it. Until it’s time to go to sleep.

My Microwavable socks
My Microwavable socks

My night splints are also fully-lined on the inside, (that’s part of the reason I find them so comfy), but it also makes my feet really hot. Usually, I find having warm toes quite a novelty, but with the added heat it’s making them just that bit too toasty.

I’ve started sleeping with my feet poking out of the bed covers to try keep them cool, but the other day I had to admit defeat and take them off. I’m even thinking of wearing them during the day (I can also wear them when I’m resting if I want to) until it cools down a bit.

Still, I’m not going to complain that the sun is here. I’m going to enjoy it while I can!

Now, who wants an ice cream?


My problems with summer clothes

The UK is still enjoying lovely warm weather which has given me the perfect excuse to break out my summer wardrobe of dresses and skirts that I’m usually just too cold to wear. You would think that I’d find these things easier to buy and put on, right?


I have loads of pretty ones in loads of colours and patterns, but I have to be quite choosy about which ones I buy. I’ve written before about the problems that I have when I have to shop for clothes and shoes at the best of times, but I have my fair share of issues with summery garments too.

Lots of women’s dresses come with zips. I don’t usually have a problem with the ones that come on coats and jackets, (usually being the word), but when it comes to dresses and cute vest tops its’ a whole other story. They’re often on the left side of things which happens to be the same side as my weak hand. Guess what this means? I can’t often can’t do them up without help, or manipulate my arm well enough to get it through the straps. Needless to say that I usually go and smile sweetly at my mum or little sister at this point so they can help me into it. For reasons unknown I can usually get back out of them on my own, which is better than nothing I suppose. Thankfully I haven’t had to go to sleep in something until there’s someone around I trust enough to help me if I get stuck inside something, but I just know it’s going to happen one day if I ever live on my own…

As for zippers on the back of stuff – forget it. I’ve lost count of the amount of times I’ve had to help my able-bodied friends with these though so I don’t feel too bad about that one. I usually try and go for things that I can step in/out of or that go over my head as much as possible.

Then once I’ve had to navigate my way through those, there is the issue of tights. Given how cold my feet pretty much always are, I always have to wear at least one pair. I struggle with socks on a good day, so you can imagine how many times I’ve fallen over/ripped pairs/sworn trying to deal with these things. Once, I went through three pairs trying to find some that I hadn’t already laddered, I was nearly in tears with effort but I got there in the end.

I love my summer wardrobe, it’s just a shame it doesn’t love me back.

The simple joys of summer

As you’ve probably guessed by now, I love the summer. The light nights, the walks with friends and the ocassional BBQ, I enjoy it all. More than anything though, I look forward to the warmth.

I’ve spoken before of how much harder I find it hard to move in the cold, and how my circulation (especially my feet) can get quite badly effected. They’re often black or grey and it’s not very pleasent as I quite often get pins and needles. So, whatever the wheather you’ll usually find me in thick socks. Well, dear readers I just wanted to write a quick post to share with you one of my most simple, but greatest joys of the season.

The other night I woke up in the middle of the night feeling far too hot, only to find that when I removed my socks (yes I keep them on for bed) my feet were a wonderful shade of pink!

Even my boyfriend was amazed.

They  stayed that way while I had a wonder around to cool off a bit, which never normally happens! It wore off in the morning though, but, hey, I’ll take what I can get.