I jinxed it…

Do you remember that bit in my previous blog post where I said that my hip and pelvis pain had been so much better since I’d been staying at home all the time?

Well, I think I jinxed it, because guess who started having a pain flare the day after I wrote it?

Yup, that’d be me.

My pelvis pain is back and making itself felt and I am most displeased.

It’s not the worst flare I’ve had in fairness but it’s caught me on the back foot, that’s for sure. I’ve spent the last couple of days trying to figure out if I’ve done anything differently that may have triggered it; something I could just stop doing and have it settle back down again. Unfortunately, the only thing that’s been different is the weather, which has gone from being wonderfully warm to flippin’ freezing.

My cerebral palsy and the pain it causes is so much easier for me to manage in the summer. Heat is one of the key ways, if not the key way that I manage my impairment on a day-to-to basis and to have the sun disappear so quickly makes my body very cranky indeed.

So, reluctantly, I have dragged my orthopaedic shorts back out of my wardrobe which will likely help if I wear them for a couple of hours every day while it’s cold. They’re custom made for me and are measured to the millimetre. They’re designed to be skin-tight and hold my hips and pelvis in the right place.

I like them and they do help, but getting them on is a total nightmare. Have you seen that bit of stand up Michael McIntyre does about watching someone put tights on? It’s like that only it takes about three times longer and doesn’t even have the slightly sexy bit at the beginning.

All in all, I shouldn’t complain, but it’s made me realise just little I’ve had to focus on managing my pain levels the last couple of weeks. Of course, it was wonderful while it lasted, but it’s hard not to feel a little bit sad when the pain becomes front and centre again.

The wind around my knees

If you’ve ever watched this video I made about learning to love my body a little while ago, then you’ll remember that I really hate showing my legs, in public and at home, if I’m being honest.

During last year’s heatwave, (which probably lasted about three days to be fair), I did leave the house in shorts without tights, but I don’t mind admitting that I stood in front of my wardrobe and cried beforehand because I was so nervous about it.

Fast-forward to 2016 and this year’s heatwave (which has been going on for a week so far!) is even hotter last year and I decided that I was going to wear my denim shorts and try not feel bad about it.

I was so surprised when I actually managed not to get so anxious that I cried (yes!). but what surprised me most of all was that I loved the feeling of the breeze about my knees. It was so refreshing and so strange because I’m just not used to it at all. Don’t get me wrong, it’s not been so nice that I want to do it all the time, but still.

This is going to sound really stupid but I’m proud of myself.

Maybe I don’t need to be so scared of not wearing tights?


Struggling in the heat

This year has been a strange one for me. Usually when it’s warm I find it a lot easier to do things than when it’s cold. I usually ache less too, which is also nice.

However, lately I’ve been noticing that things are quite different. Take the day I’m writing this post for example (yesterday for you guys). It’s boiling. I’m never one to say it’s too hot, but today I think it pretty much is. I went for a really quick walk and I really struggled with it because I was so warm. It took a lot more energy out of me that a journey of that length would usually have done, and I’ve noticed it more and more this year, even though I don’t think it’s been any hotter than last year. I was fine then. In fact, I loved the heat last year.

Do any of you struggle with the heat? How do you cope?

Fun Fact Friday [40]

Hello and welcome to Fun Fact Friday, the place where I share facts about myself that aren’t linked to my Cerebral Palsy.

I have a feeling a lot of you will be saying ‘yeah, me too’ when you read today’s little fun fact.

Did you know that I get Hay Fever in the summer? I didn’t get it when i was younger, but in the summer I took my A-levels it decided to put in an appearance and has done every year since.

It makes me sneeze, gives me a runny nose, and also makes me itch like crazy,especially on my arms and sometimes my face too. Oh, and don’t get me started on the itchy eye thing…

It seems to be grass and flowers that set me off the most. On certain days, it seems like I can taste the pollen in the air too, and feel it on my skin.

Do any of you get that too?