Ready for bed

It’s about 12:20am on Sunday morning (I’m still going to call it Saturday night, if that’s okay with you), and I am ready for bed. Sleepy-ness wise and cerebral palsy-wise.

It’s been a fairly mixed day CP-wise. It didn’t start out great. It’s been freezing and that makes my muscles feel tighter. I’ve had a different type of aching in my hips to what I’m used to, which I’ll talk about in another post when I’m a bit more alert.

Anyway, I hid under my duvet in thick jeans and a giant hoody for most of the day, had a nap (it’s what Saturdays are for, right?) and then went out with my friends because two of them have a birthday this weekend.

I was a bit worried at first because it was even colder outside and a bit icy, but I had a lovely time and it was actually was nice-and-toasty-warm in the pub.

Then I came home and got a hot shower on impulse. I even washed my hair. Then I got out with my muscles feeling extra relaxed and ready for sleep. Then, because my mum was still up I asked her if she’d put my resting splints on. I’m sat in them now as I type and it feels really good. I don’t wear them as often as I should because I forget to ask someone to help with them before they go to bed, but tonight it was one of those times where (and this will probably sound strange, but I’m tired so please go with it), the way my ankles were feeling it was like my body was asking me to put them on because it wanted the extra stretch while my muscles aren’t as tight as usual, which means they won’t fight against it quite so much.

Someone please tell me you know what I mean…anyone?

And with that, I’m going to go to sleep now. I should have written this after I’d slept, but the writer in me thinks it’s kinda special to be able to write something in the moment.

I really just said that, didn’t I?


And so I’ve made a start…

Well, it may only be October but I’ve already started Christmas shopping.

Don’t hate me for bringing up the C-word. I’m not ready either

I’m not sure quite how I feel about this. Part of me feels like it’s far too early to be doing it, but on the other hand I feel like it’s probably a good thing. I love shopping any time of the year but the last couple of weeks of November and December, during which the thought of donning about 17 layers of clothing and hoping that there’s no ice around for me to slip on makes me feel a bit ill.

We all know what it’s like, there’s just so many people, and everyone’s in a rush and wants to make sure the get hold of all the gifts they want to give people before they all go out of stock.

I always feel like I should save one or two things to buy in the last few days before Christmas, but it’s just not wise for me.

I should probably also think about re-stocking my glove collection, as I tried looking for some the other day and could only find one pair, although I usually have about five because I always lose them.

Maybe I should buy some thicker socks too…hmm…

I have such a love/hate relationship with this time of year…

Trying more calipers

My callipers
My calipers

Long time readers of this blog my remember that I tried wearing calipers as an alternative to splints a couple of years ago.

While they were better for me in some ways, like I could get them on and off myself, I blistered quite badly if I wore them for too long and so in the end I went back to my splints.

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Cerebral palsy and spasms

Hi guys, today I want to talk about spasms and maybe ask you a couple of questions too.

I get them sometimes, usually only in my legs. They used to be quite a rare thing for me. My mum aid I used to get them a lot as a baby/toddler but I don’t remember having them much as a child and teenager.

However, I think it’s fair to say that a lot of things in the cerebral palsy-side of my life have changed loads over the last couple of years. Longer readers of this blog will know that I’ve had more bad days and tire more quickly now than I used to, but I’ve also noticed that I’ve been having more and more spasms too.

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One thing leads to another

Do any of you ever have those days where your balance is really bad or you just generally feel really unsteady on your feet and then it has a knock-on effect of loads of other stuff you try and do?

I dropped a glass the other day, and that in my worry that it would smash everywhere and I wouldn’t be able to clean t up, I dropped another. As it happened, neither of them actually broke. I have no idea how I managed to be so lucky but I’m not going to complain about it!

Continue reading “One thing leads to another”